One Thing Every Family Member Must Understand About Fibromyalgia
Suffering from a chronic disease is never easy. But it gets even worse when doctors have such a hard time to diagnose it as it is the case of fibromyalgia.
The truth is that there is an estimate that about 10 millions of Americans suffer from fibromyalgia. That’s a lot of people suffering from this terrible disease that has no cure. So, when someone is finally diagnosed, how can you tell your family and friends? What exactly will you tell them?
After all, if you think about it, fibromyalgia is an unseen illness. It is characterized by widespread pain in your tendons, ligaments, and muscles, not to mention the fatigue that is associated with it.
Many people have never heard about fibromyalgia and the few who did are simply misinformed. So, immediate judgments tend to start. If there is something that your family members and your friends need to know is that this is an invisible illness that affects your body and mind. But how can you explain them? The truth is that you don’t have any broken bone or open wound to show that you are in pain. But the truth remains: you suffer from a disease that is invisible and that there is no cure for. However, on the outside, you won’t tell the difference between someone who suffers from fibromyalgia and someone who doesn’t. Nevertheless, the pain is real and affects you. And this is exactly what you need to show your family and friends.
One of the things that tend to affect most people who suffer from fibromyalgia is the fact that people simply assume they are lazy, that they don’t want to work. However, this is exactly the opposite. Living with such a severe and extreme pain all over your body is not easy, there is no quality of life. For many people who suffer from fibromyalgia, they would just like to have the strength to go to work, to not have the mental fog that prevents them from focusing and concentrating. It’s already embarrassing enough for them to tell their boss they can’t go to work because they are in pain. And when you some others saying and showing in actions that they think they are deceiving, it’s pure evil.
The reality is that there is a clear difference between healthy and happy. When you have the flu, for example, you may feel terrible for a couple of days. But you know that you just need to take your medicine, rest for a few days, and you are good to go. However, when you are ill for years, knowing that you are ill for the rest of your life and taking medicines to help you deal with pain, it sometimes is unbearable.
Unfortunately, body and mind of someone who suffers from fibromyalgia and someone who doesn’t isn’t the same. They don’t work the same way. When you suffer from fibromyalgia, you deal with terrible pain. Yes, there are times when you don’t have it but, out of the blue, without any apparent cause, there it is again. The reality is that most friends tend to disappear thinking that you are simply faking everything and you’re just lazy, and this will also happen with some family members. However, you just need some kind of support. Yes, sometimes you may not treat people who love you very well. Other times, you just need their shoulder and to be heard. That all that fibromyalgia patients ask. A little understanding, compassion, and no judgments. The truth is that the didn’t ask for this chronic disease and they certainly don’t deserve it. No one does.
Not remembering where you placed your keys to later discover them inside the fridge, being able to do one task today that you don’t know if you’re going to be able to do it again tomorrow or the next week, it’s simply frustrating, in a lack of a better word.
In sum, if there is something that every family member must understand about fibromyalgia is that it is an invisible pain that affects both the mind and the body. While people who suffer from fibromyalgia do all they can to get better, the truth is that there is no cure. They will have good days and bad days.
I have a family which whom I love so much. I have three small children and a husband to look after. Along from being a mom and wife, I’m a woman with a myriad of interests -mom tips, health, personal development, decorating, organizing, finances, frugality, family time. I'm always looking for ways to better myself to pass along to my children
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